Tayler is definitely my deep thinker. He asks all sorts of interesting questions and really ponders our answers. Yesterday morning he jumped into bed with Nathaniel and I after breakfast. 'Mummy, I've been thinking about wheelchairs and stuff', he said, 'Oh yes, tell me what you've been thinking' I responded. 'Well, one day I might be in a wheelchair, because you know I have splints, like Grandpa, and Grandpa has a wheelchair too'. We've not talked too much about the progression of Tayler's muscular condition with him, so as not to worry him, but of course he's a clever boy and is able to realise the similarities between himself and his Grandpa. Our plan is to answer each question or thought he has in his time frame, praying that we'll have suitable answers that will help him deal with his disability.
This was a biggie, I didn't want him to be scared or worried about having to be in a wheel chair one day, which is a definite possibility. I responded by saying 'Maybe, but not for a long time yet'. There is of course the possibility of some treatment, maybe he'll never need a wheel chair, researchers say they get closer and closer each year, but we don't know for sure whether a treatment will be of any benefit for Tayler. He also may or may not have the same course of muscle degeneration that his Grandpa has, it's a huge unknown. I could see that he was thinking about my response, I asked him if that worried him, his answer amazed me. 'Nope' he said. 'I like wheelchairs, because you can relax in them and let someone else push you around!'. What an amazingly positive answer! His strength and positive attitude really are incredible, I was so proud of him.
I was touched by the words of President James E. Faust in this months Ensign he was quoted as saying “The challenge of having handicapped people is not new. Many have questioned why some have such limitations. It was so in the time of Jesus:
“‘And as Jesus passed by, he saw a man which was blind from his birth.
“‘And his disciples asked him, saying, Master, who did sin, this man, or his parents, that he was born blind?
“‘Jesus answered, Neither hath this man sinned, nor his parents: but that the works of God should be made manifest in him.’ (John 9:1–3)” (President James E. Faust (1920–2007), Second Counselor in the First Presidency, “The Works of God,” Ensign, Nov. 1984, 54. )
I recognise that it takes great faith to see disability in this way, but these words really do bring me great comfort. I feel so privileged to have Tayler as my son, he is a truly remarkable boy, and I really do hope that the 'works of God will be made manifest in him', whether that be simply for his own eternal benefit, or whether he will bless the live of others. His feelings about being in a wheelchair one day, only confirmed this more for me.